USA: New Williams Institute report analyses three decades of HIV criminalisation prosecutions in Michigan

Enforcement of HIV Criminalization in Michigan

Using data obtained from the Criminal History Record database maintained by the Michigan State Police Criminal Justice Information Center, this study examines the enforcement of HIV nondisclosure laws from 1991 to 2024.

Executive Summary

Michigan’s HIV criminal laws date back to the 1980s, and it is the state with the first known conviction under an HIV criminalization law. The Williams Institute analyzed data from 1991 to 2024 from the state of Michigan regarding individuals with criminal cases alleging HIV nondisclosure under Michigan Compiled Laws § 333.5210 in the state’s penal code. Records were obtained from the state’s Criminal History Record database maintained by the Michigan State Police Criminal Justice Information Center. These records contained information on 90 cases that resulted in misdemeanor or felony convictions or were pending outcomes for a felony charge at the time of the data request and contained at least one HIV-related nondisclosure charge.

General Findings

  • Between 1991 and 2024, there were at least 90 cases involving 79 people and 116 HIV-related criminal charges involving HIV nondisclosure in Michigan.
    • In all, 74 cases resulted in conviction on an HIV-related offense. These cases involved 68 people and 109 separate HIV-related charges.
    • Nine people are awaiting a decision for a current HIV-related felony charge.
  • While enforcement of the HIV nondisclosure law occurred across Michigan, prosecutions were primarily concentrated in four counties.
    • Cases were concentrated in four counties in the Southeast Lower Peninsula region around the Metro Detroit area. Wayne County—home to Detroit—accounted for 16% of all HIV-related criminal cases, followed by Macomb County (7%), Washtenaw County (7%), and Oakland County (4%). Together they comprised one-third (34%) of all HIV-related cases in the state, but two-thirds (67%) of people living with HIV (PLWH) in the state.
      • While Wayne County was home to 42% of the state’s PLWH, it recorded only 16% of the state’s HIV nondisclosure cases.
  • Men were overwhelmingly represented among individuals in the HIV-related cases analyzed, accounting for 85% of people with HIV-related cases in Michigan. Men were about 77% of PLWH in Michigan.
  • When looking across race categories, Black (46%) and white (53%) Michiganders made up roughly equal shares of people criminalized.
    • However, Black people in Michigan accounted for 14% of the state’s population and 53% of PLWH in the state. White Michiganders, by contrast, made up 78% of the population and 34% of PLWH in the state.
    • As a result, Black people in Michigan are overrepresented when compared to their share of the state’s overall population, while white people in Michigan are overrepresented compared to their share of the state’s population of PLWH.
      • Black men made up only 7% of Michigan’s population, yet 40% of PLWH, and they account for 43% of individuals convicted or with pending HIV-related cases.
      • White men comprised 41% and white women 13% of those convicted or with pending cases, despite representing only 29% and 4% of PLWH, respectively.
      • Although Black women make up 8% of Michigan’s population and 13% of PLWH, they account for only 1% of convictions or pending cases.

2019 Legislative Reform

  • In 2019, Michigan reformed its HIV-related nondisclosure law. Before the reform, nondisclosure of HIV status before any form of “sexual penetration,” including oral sex, was criminalized. The reform narrowed the scope of criminalized behaviors to anal and vaginal intercourse. It required either 1) intent to transmit HIV to an intimate partner, 2) actual HIV transmission, or 3) reckless disregard for transmission risk to sustain a conviction.
    • Prosecutions continued post-reform: since enactment of the 2019 legal change, there have been at least 11 HIV-related nondisclosure cases involving 30 individual HIV-related nondisclosure charges.
      • However, there appears to be a recent decline in enforcement. There were nine HIV-related cases between 2020 and 2024 (the five years after the law was reformed) compared to 23 HIV-related cases between 2014 and 2018 (the five years before the law was reformed).
    • Ten charges under the reformed law have resulted in a conviction. All but two were for reckless disregard (a misdemeanor offense); one was for felony intent to transmit, and one appeared to be under the pre-reform statute, although the final court disposition came after the law went into effect.
      • There have been no convictions of actual transmission of HIV (a felony) under the new law.
    • Another 10 charges are awaiting a final disposition under the new law: nine for alleged intent to transmit and one for alleged misdemeanor reckless disregard.

Other Findings

  • Between 1991 and 2024, the Michigan State Police Criminal Justice Information Center, which maintains the state’s Criminal History Record database, did not identify any records in response to our data request documenting convictions under Michigan’s law that criminalizes PLWH for donating blood.
  • Further, between 1991 and 2024, the data provided by the Michigan State Police Criminal Justice Information Center included no mandatory testing charges that resulted in a conviction for that charge, and no convictions stemming from a mandatory testing charge have occurred since 2008.

Download the full report

New Zealand: New Zealand’s HIV progress undermined by stigma and outdated laws

Experts warn stigma, outdated laws obstacles to ending HIV transmission

New Zealand is on track to record its lowest number of new HIV diagnoses in decades – but advocates say progress is at risk because stigma and outdated laws still shape the lives of people living with HIV.

Just 95 people were diagnosed with HIV in 2024, with even fewer expected this year. But, despite the medical advances behind that decline, discrimination remains widespread.

Judith Mukakayange from Positive Women Inc said she still sees stigma harming families.

“I got a call about a family denied emergency housing because the mother is living with HIV. They believed she could transmit HIV just by sharing a house, which is not true.”

Burnett Foundation Aotearoa CEO Liz Gibbs said outdated criminal laws also contributed to the stigma.

“If you don’t declare your status and have unprotected sex, you can be criminally prosecuted under New Zealand law, despite being on treatment and having an undetectable viral load. They cannot transmit HIV, and therefore shouldn’t be criminalised.”

Rodrigo Olin German, who has lived with HIV for 22 years, said too few New Zealanders understood the science behind modern treatment.

“Very few people know that people with HIV cannot pass it on if they are on effective treatment. We need more education and wider national campaigns.”

A history of acceptance – a present-day problem

New Zealand once prided itself on its compassion toward people living with HIV. In the 1980s, Eve van Grafhorst, a young girl ostracised in Australia after contracting HIV through a blood transfusion, was welcomed in Aotearoa and able to live a normal life.

Advocates say that spirit has faded, and that public attitudes today are still shaped by fear rather than science.

Survey reveals widespread misunderstanding

New research released ahead World AIDS Day highlights the scale of the problem:

  • 41% of New Zealanders are not comfortable having food prepared by someone living with HIV
  • 82% say they would be uncomfortable having a sexual relationship with someone with HIV
  • 23% would be uncomfortable shaking hands.

Calls for law reform and access to medication

At a World AIDS Day breakfast at Parliament, the Burnett Foundation called on the Government to update HIV criminalisation laws and improve access to modern medicines.

Gibbs said New Zealand was significantly behind other countries.

“Some of our medication regime is 15 years or longer behind best practice in OECD nations. In other countries, you would have access to long-acting injectable treatment.”

Government response

The Government says there are no current plans to review HIV criminalisation laws.

However, officials have been asked to provide advice on endorsing the U=U campaign, which highlightedthat HIV can be both undetectable and untransmittable with the right treatment.

Advocates say embracing U=U publicly, updating the law and improving medication access could put New Zealand on track to become one of the first countries in the world to reach zero new transmissions.

Canada: Advocates urge Liberals to honour the Trudeau government’s commitment to reform HIV disclosure laws

Words aren’t enough: Canada must deliver on HIV criminal reform

HIV criminalization is not a new concern. For decades, people living with HIV in Canada have faced the reality that they can still face public outing by authorities, prosecution by the “justice” system, and imprisonment for allegedly not disclosing their HIV status to a sexual partner. This continues to be the case today, even in situations where there was no realistic possibility of transmission, no intent to transmit, and no transmission actually happened.

And for decades, people living with HIV, activists and community advocates, legal minds, and public health and medical experts have shown again and again that Canada’s terribly punitive approach is discriminatory, scientifically outdated, and harmful to public health. It reinforces and codifies systemic injustices and inequalities based on race, migration status, sexual orientation, and gender. It contradicts current science on HIV transmission, and it entrenches HIV stigma, further cementing barriers that people living with HIV face to accessing care and treatment, not to mention housing, employment, and personal safety. How can we expect people to feel safe getting tested and learning their HIV status when it could later be vindictively used against them?

That’s why it really mattered when, on December 1st, 2017, the Government of Canada acknowledged these very concerns and highlighted the problematic state of HIV criminalization on World AIDS Day in their report Criminal Justice System’s Response to Non-Disclosure of HIV. The problem is that since 2017, the government’s actions have not caught up to words and there has been little progress from Canada to right these wrongs. People living with HIV in this country continue to be forced to live in fear.

Over the last eight years, activists, led by people living with HIV themselves, have continued to move the needle on HIV criminalization. Thanks to their efforts, the federal government announced national consultations on HIV criminalization at the 2022 International AIDS Conference, which was held in Montreal. “Our government recognizes that the criminalization of people living with HIV can lead to stigmatization and significant hardships,” stated then-Minister of Justice David Lametti. “This is why we are consulting Canadians on the best approach to reform the criminal law regarding HIV non-disclosure. It will help us find solutions, and will lead to better outcomes for affected populations.”

Those consultations concluded in early 2023 and since that time, no law reform has been introduced. Productive meetings with advocates aimed at making meaningful change continued for a time, until the Government of Canada quietly informed us last year that it had put any plans for real justice on the backburner.

While other jurisdictions, including various American states, such as Nevada, Virginia, Maryland, and Illinois, narrow or eliminate misguided prosecutions, the threat of criminalization continues to hang over the heads of people living with HIV here in Canada. In parallel, at a time when fewer people are being diagnosed with HIV around the world, HIV cases rose a staggering 35.2% in Canada between 2022 and 2023. While preliminary data from 2024 indicate a slight decrease in new cases in Canada, only time will tell whether this represents a reversal from recent worrying trends. What remains clear is that Canada must do more – both in its legal and policy responses – to get back on track toward the goal of eliminating HIV as a public health threat by 2030.

And so, every World AIDS Day, advocates find themselves writing yet another op-ed urging Canada to act. The headlines over the past few years alone tell the story: “Unjust HIV Criminalization is a National Disgrace”; “The Government of Canada Must Act to End the Harms of HIV Criminalization”; “We Need to Stop Criminalizing People with HIV”; “Let’s Stop Criminalizing HIV Status.” How long until these headlines are finally replaced with news that Canada has followed through on its promises to end the harms of HIV criminalization?

With a new government in place, we are feeling more hopeful than we were last World AIDS Day. But this government still needs to take firm and decisive action to bring Canada’s laws in line with science and human rights, and remove the stigma and discrimination against people living with HIV that is currently entrenched in our justice system. In so doing, we could envision a very different headline for next year’s World AIDS Day op-ed, and a very different reality for people living with HIV in Canada.

Muluba Habanyama is the Chair of the Canadian Coalition to Reform HIV Criminalization

Colin Hastings is an Assistant Professor at the University of Waterloo

André Capretti is a Policy Analyst at the HIV Legal Network

Uganda: Uganda faces a choice between scientific progress and harmful criminalisation

Uganda’s HIV future needs laws advancing progress, not repeating past

OPINION

By Belinda Agnes Namutebi

Imagine a truck arriving at your warehouse with goods you know you desperately need. They align with the future you have projected. They represent freedom, protection, and progress. They carry value that will transform your operations for years to come. But as you stand there receiving these goods, grateful for their arrival, you remain wary of a roadblock just outside your gate. A hindrance with the power to undo everything you have procured. An obstacle that does not care how far the goods have travelled or how important they are for your future.

That roadblock is Uganda’s outdated HIV & AIDS Prevention and Control Act.

Despite the funding disruptions that have threatened Uganda’s health system this year, we have been listed among the countries to receive support from the Global Fund and the United States government for the rollout of long-acting Lenacapavir, the twice-yearly injection that offers six months of protection against HIV.

Science has delivered an HIV prevention tool that complements the options Uganda already has, such as the ABC approach, oral PrEP, the dapivirine ring, and long-acting Cabotegravir. Lenacapavir offers six months of protection, which means that people at risk of HIV no longer need to take a daily pill. This convenience reduces the pill burden, which may in turn improve adherence, strengthen continuity of prevention, and ultimately lower new HIV infections, contributing to a better quality of life.

Lenacapavir is also discreet and offers genuine choice. Young women and girls who are exposed to HIV can now select a method that fits their realities. That freedom of choice is empowering, and it naturally reduces stigma because prevention becomes a private, dignified, and self-directed decision.

The economic benefit of Lenacapavir for Uganda’s health budget is significant. Every infection prevented is a treatment avoided. The more people who remain HIV-free because of long-acting prevention, the fewer resources the country will spend on lifelong HIV treatment.

Now this science arrives in Uganda and meets a law that criminalises having HIV. A law like this creates fear, which means people avoid testing because they do not want to be labelled criminals. When the law makes testing feel dangerous, people stay away from the very services that are meant to help them. If they do not test, they will not know their status. And if they do not know their status, they cannot make informed decisions about whether to start HIV treatment or whether to use HIV prevention tools, especially if they are at risk.

Science has already provided these tools: treatment that suppresses the virus, and prevention options that protect people before exposure. But without testing, none of this reaches the people who need it. Lack of testing also reduces disclosure, breaks trust, and eventually affects adherence because people operate in secrecy instead of safety.

The result is that the law ends up keeping people away from the systems that could protect them. Instead of slowing HIV transmission, it drives it underground. Instead of supporting prevention, it actively undermines it. The law creates the very silence that science is trying to break.

Uganda now stands at a moment when science is offering us a new beginning. Long-acting prevention is here. Global partners are ready. Communities are ready. Young women are ready. The only part of the system still living in 2014 is the law. If we want the goods at our warehouse to reach the people they are intended for, we must clear the road ahead.

As Uganda moves toward the polls to choose a new Parliament, this cannot be a forgotten issue. The HIV legislation must be at the top of the legislative agenda. Our next Parliament must decide whether Uganda will move forward with science or remain anchored to a past that no longer protects us.

Canada: Reform of HIV criminalisation laws remains stalled amid political delays

Advocates against HIV criminalization decry Carney silence on reform Trudeau promised

OTTAWA — HIV activists say there is mounting frustration in communities affected by the virus, amid near-silence from the federal government nearly 10 years after the Liberals pledged to reform laws surrounding HIV disclosure.

“We’re coming up on a decade,” said Muluba Habanyama, head of the Canadian Coalition to Reform HIV Criminalization. “There definitely has been some exhaustion.”

Canadians living with HIV can be prosecuted for not disclosing their status to sexual partners, even when they are taking prescription drugs that the Public Health Agency of Canada says renders HIV “untransmittable” to someone without the virus.

The HIV Legal Network says more than 220 people have been charged in Canada for allegedly not disclosing their HIV status since 1989.

The Liberals have been promising to fix the issue since 2016, and issued advice to prosecutors in 2018 meant to prevent them from laying criminal charges when there is no realistic possibility of transmission.

Still, HIV service organizations in Habanyama’s coalition encounter situations every few months, such as someone being arrested when an aggrieved ex-partner claims they were exposed to the virus.

A prosecution under sexual assault can put them on the National Sex Offender Registry.

“We are demonized,” said Habanyama, who has had HIV since birth.

She has watched for 32 years as medical experts developed increasingly effective tools to treat and prevent the virus.

“I’ve literally grown up with the science, but then seeing the law be exactly the same,” she said.

Even if people aren’t being criminally charged for non-disclosure, the experience of police questioning someone or taking them into custody sends a message to others who suspect they have HIV that they might be better off not getting a test.

“People are like ‘well, I don’t know my status; I can’t get charged,’” Habanyama said. “If they don’t have a record of you getting tested, you can’t prove that you knew.”

The Department of Justice acknowledged the issue in an October 2022 notice, when it launched consultations for legal reforms, six years after the Liberals first pledged action on the issue.

“Criminalization can lead to the stigmatization of people living with HIV, which can often discourage individuals from being tested or seeking treatment,” the department wrote at the time.

Other countries have reformed their laws, in recognition that the threat of prosecution prevents reaching global public-health targets of having 95 per cent of people who have HIV aware of their status and on medication.

Only 89 per cent of people with HIV in Canada know their status, according to 2022 data.

A 2022 study of 600 Canadian women living with HIV found one-fifth faced more verbal, physical or sexual violence because of HIV criminalization, such as a man who rapes a woman and threatens to report they’ve been exposed to HIV if the woman files assault charges.

“This is really affecting the lives of people living with HIV, and stops them from taking care of themselves,” Habanyama said.

The Liberals have pledged to table legislation, but put froze those plans last fall, blaming Conservative filibustering for a logjam in Parliament. The government then prorogued Parliament and went into an election, followed by a brief spring sitting.

Prime Minister Mark Carney’s government has given no indication if it will table legislation.

Justice Minister Sean Fraser was not available for an interview despite repeated requests from The Canadian Press over several weeks. He has also not agreed to meet with the coalition, instead offering a meeting with his staff members.

“Our work is ongoing and we are engaging with stakeholders at this time,” wrote Lola Dandybaeva, a spokeswoman for Fraser.

André Capretti, a policy analyst with the HIV Legal Network, said it has been “mostly radio silence” since Carney took office, though he said it’s possible the government is still getting its business in order through the summer break.

“We were making a lot of progress with the Liberal government, who was very much committed to reform on this issue and showed real commitment to engaging us,” he said, noting Justin Trudeau’s justice ministers seemed attentive.

Still, there is inconsistent enforcement across provinces, with some largely ignoring Ottawa’s 2018 advice to prosecutors, which is only binding in the territories.

“We still know of cases in the past year, of prosecutions having been initiated against people living with HIV for non-disclosure,” Capretti said.

“There is definitely frustration that has built up, just based on how long this has been ongoing and the number of repeated commitments … from different justice ministers.”

Habanyama said Canada needs a rethink in how it legislates and thinks about HIV.

She recalls her Catholic elementary school in Oakville, Ont. teaching her in the mid-2000s that HIV meant death and was the result of reckless sex, with no mention that people like her contracted it in the womb or from their mother’s breast milk.

“I was raised (to understand) this is a shameful secret that we can’t tell anybody, that this is a really bad thing.”

When she visits schools to talk about HIV, she asks students what someone with HIV looks like, and the students often say they’d expect someone bald with scars on their body. They’re often surprised when she tells them she has HIV.

The threat of criminalization looms large among Black women and gay men. Multiple woman with roots in the Caribbean who live with HIV have told Habanyama to preserve evidence in case a sexual partner ever accuses her of exposing them to HIV — including their DNA.

“These groups of women were telling me that when I have sex, I should put the man’s condom in the freezer so that I have proof if the police ever come, that we used protection.”

She said Canadians should ask their politicians to do more, particularly when they show up at events like this weekend’s Pride parade in Ottawa.

“HIV can happen to anybody,” Habanyama said. “We are all supposed to be in this together.”

 

US: Louisiana’s HIV laws lag behind HIV science

Louisiana upholds its HIV exposure law as other states change or repeal theirs

When Robert Smith met his future girlfriend in 2010, he wanted to take things slowly. For Smith, no relationship had been easy in the years since he was diagnosed with the human immunodeficiency virus, or HIV. People often became afraid when they learned his status, even running away when he coughed.

The couple waited months to have sex until Smith felt he could share his medical status. To prepare her, Smith said, he took his girlfriend to his job in HIV prevention at the Philadelphia Center, a northwestern Louisiana nonprofit that offers resources to people with HIV, which also provided him housing at the time.

Finally, he revealed the news: Smith was diagnosed with HIV in 1994 and started taking daily antiviral pills in 2006. The virus could no longer be detected in his blood, and he couldn’t transmit it to a sexual partner.

Smith said his girlfriend seemed comfortable knowing his status. When it came to sex, there was no hesitation, he said. But a couple of years later, when Smith wanted to break up, he said, her tone shifted.

“She was like, ‘If you try to leave me, I’m gonna put you in jail,’” recalled Smith, now 68. “At the time, I really didn’t know the sincerity of it.”

After they broke up, she reported him to the police, accusing him of violating a little-known law in Louisiana — a felony called “intentional exposure to HIV.” He disputed the allegations, but in 2013 accepted a plea deal to spend six months in prison on the charge. He had a few months left on parole from a past conviction on different charges, and Smith thought this option would let him move past the relationship faster. He didn’t realize the conviction would also land him on the state’s sex offender registry.

For nearly two decades, Smith had dealt with the stigma associated with having HIV; the registry added another layer of exclusion, severely restricting where he could live and work to avoid minors. Not many people want to hire a sex offender, he said. Smith has been told by the local sheriff’s office he’s not allowed to do simple things, like go to a public park or a high school football game, since the conviction.

“I’ve been undetectable for 15 years, but that law still punishes us,” Smith said.

Louisiana is one of 30 states with criminal penalties related to exposing or transmitting HIV. Most of the laws were passed in the 1980s during the emergence of the AIDS epidemic. Since then, several states have amended their laws to make them less punitive or repealed them outright, including Maryland and North Dakota this year.

But Louisiana’s law remains among the harshest. The state is one of five that may require people such as Smith to register as a sex offender if convicted, a label that can follow them for over a decade. And state lawmakers considered a bill to expand the law to apply to other sexually transmitted infections, then failed to pass it before the session ended.

Meanwhile, people with HIV also face the threat that federal funding cuts will affect their access to treatment, along with prevention efforts, supportive services, and outreach. Such strategies have proved to slow the HIV/AIDS epidemic, unlike the laws’ punitive approach.

The tax and domestic policy law previously known as the “One Big Beautiful Bill” will likely affect HIV-positive people enrolled in Medicaid by reducing federal support for Medicaid and restricting eligibility. About 40% of adults under 65 with HIV rely on Medicaid.

The Trump administration proposed in its fiscal 2026 budget request to eliminate HIV prevention programs at the Centers for Disease Control and Prevention and to cancel a grant that helps fund housing for people with HIV. The Ryan White HIV/AIDS program, the largest federal fund dedicated to supporting HIV-positive people, also faces cuts. The program serves more than half of the people in the U.S. diagnosed with HIV, including in Louisiana, according to the health information nonprofit KFF.

Public health officials maintain that state laws criminalizing HIV exposure hurt efforts to end the HIV epidemic. Epidemiologists and other experts on AIDS agree that the enforcement of such laws is often shaped by fear, not science. For example, in many states that criminalize HIV exposure, people living with HIV can face heightened criminal penalties for actions that can’t transmit the virus, such as spitting on someone. The laws further stigmatize and deter people from getting tested and treatment, undermining response to the epidemic, experts say.

At least 4,400 people in 14 states have been arrested under these laws, though data is limited and the actual number is likely higher, and the arrests aren’t decreasing, according to analyses by UCLA’s Williams Institute.

“ Some people think it’s an issue that’s gone away, and that simply isn’t the case,” said Nathan Cisneros, a researcher at the Williams Institute.

In Louisiana, a 2022 Williams Institute analysis found at least 147 allegations reported to law enforcement under the state’s HIV law from 2011 to mid-2022. Black people made up nearly three-quarters of the people convicted and placed on the sex offender registry. Most were Black men, like Smith. At the time of the analysis, Black people made up about two-thirds of HIV diagnoses in the state.

“ We see over and over that Black people are disproportionately affected by the HIV epidemic and disproportionately affected by policing and incarceration in the United States,” Cisneros said.

Nationally, other marginalized groups such as women, sex workers, the queer community, or people who overlap across more than one group are also disproportionately arrested and prosecuted under similar criminalization laws, Cisneros said.

Ensnared in the system

Louisiana’s law hinges on the requirement that if a person knows they have HIV, they must disclose their HIV status and receive consent before exposing someone to the virus.

Louisiana District Attorneys Association Executive Director Zach Daniels said these cases don’t come up often and can be difficult to prosecute. Daniels said the intimate nature of the cases can lead to little evidence in support of either side, especially if the accuser doesn’t contract HIV.

When it comes to talking about one’s sex life, Daniels said, “there are often no other witnesses, besides the two participants.”

Louisiana’s law is written so that “intentional exposure” can occur through “any means or contact.” That includes sex and needle-sharing, practices known to transmit the virus. But the language of the law is so broad that actions known not to transmit the virus — like biting or scratching — could be included, said Dietz, the statewide coordinator for the Louisiana Coalition on Criminalization and Health, an advocacy network founded by people living with HIV that has opposed the law.

The broad nature of the law creates opportunities for abuse, as the threat of being reported under the law can be used as a coercive tool in relationships, said Dietz, who goes by one name and uses they/them pronouns. Such threats, Dietz said, have kept people in abusive relationships and loomed over child custody battles. Dietz said they’ve supported people accused of exposing their children to HIV in ways that are not medically possible.

“ ‘Any means or contact’ could be just merely being around your kids,” they said.

The prosecutors’ organization still supports the law as a recourse for emergency responders who, in rare instances, come into contact with blood or syringes containing the virus. In one recent high-profile case in New Orleans, the law was used against a local DJ accused of knowingly transmitting HIV to several women without informing them of his status or using a condom.

The person accused of violating the law, not the accuser, must prove their case — that they disclosed their HIV status beforehand. Without a signed affidavit or tape recording, courts can end up basing their decisions on conflicting testimonies with little supporting evidence.

That’s what Smith alleged happened to him.

After his relationship ended, he said, he remembered being called into a meeting with his parole officer where a detective waited for him, asking about his former relationship and whether his girlfriend had known about his HIV status.

Smith said yes. But that’s not what she had told police.

Verite News could not find a working phone number for Smith’s former girlfriend but corroborated the story with the incident’s police report. His attorney at the time, a public defender named Carlos Prudhomme, said he didn’t remember much about the case, and court documents are sealed because it was a sex offense.

In court, it was her word against his. So when he was offered six months in prison instead of the 10-year maximum, he switched his plea from not guilty to guilty. But he said he didn’t know his new conviction would require him to register as a sex offender once he got out — worsening the stigma.

“When people see ‘sex offender,’ the first thing that comes to their mind is rape, child molester, predator,” Smith said. “This law puts me in a category that I don’t care to be in.”

He has tried to make the most of it, despite the expense of paying fees each year to re-register. After being rejected from jobs, he started a catering business and built a loyal clientele. But he said he’s still stuck living in a poorly maintained apartment complex primarily inhabited by sex offenders.

“I understand their strategy for creating this law to prevent the spread, but it’s not helping. It’s hurting; it’s hindering. It’s destroying people’s lives instead of helping people’s lives, especially the HIV community,” he said. “They don’t care about us.”

The case for reform

Since 2014, there has been a nationwide effort to update or repeal state laws that criminalize HIV nondisclosure, exposure, or transmission. A dozen states have changed their laws to align more closely with modern science, and four have gotten rid of them completely in hopes of reducing stigma and improving public health outcomes, according to the Center for HIV Law and Policy.

Sean McCormick, an attorney with the center, said these changes are influenced partly by a growing body of evidence showing the laws’ negative consequences.

McCormick said the laws offer a “clear disincentive” for people to get tested for HIV. If they don’t know their status, there’s no criminal liability for transmission or exposure.

A 2024 survey by Centers for Disease Control and Prevention and DLH Corp. researchers found that after California updated its HIV criminalization law in 2018, respondents were more likely to get tested. Meanwhile, survey respondents in Nevada, which still had a more punitive law on the books, were less likely to get tested.

There’s no one-size-fits-all solution, McCormick said. His center works with HIV-positive people across the country to determine what legislative changes would work best in their states.

Texas was the first to repeal its HIV law in 1994.

“As a person living with HIV in Texas, I’m deeply appreciative that we don’t have an HIV-specific statute that puts a target on my back,” said Michael Elizabeth, the public health policy director for the Equality Federation.

But Elizabeth points out that Texans living with HIV still face steeper penalties under general felony laws for charges such as aggravated assault or aggravated sexual assault after state courts in Texas equated the bodily fluids of a person with HIV with a “deadly weapon.”

Louisiana activists have pushed lawmakers in the state to amend the law in three ways: removing the sex offender registration requirement, requiring transmission to have occurred, and requiring clear intent to transmit the virus.

“Our strategy, as opposed to repeal, is to create a law that actually addresses the kind of boogeyman that they ostensibly created the law for: the person who successfully, maliciously, intentionally transmits HIV,” said Dietz with the Louisiana Coalition on Criminalization and Health.

In 2018, a bill to narrow the statute was amended in ways that expanded the law. For example, the updated law no longer had any definition of which actions “expose” someone to HIV.

In 2023, state lawmakers created a task force that recommended updating Louisiana’s law to align with the latest public health guidelines, limit the potential for unintended consequences, and give previously convicted people a way to clear their record.

Lawmakers in the state House pushed forward a bill this year to criminalize other sexually transmitted infections, including hepatitis B and the herpes simplex virus. That bill died in the Senate, but it spurred the creation of another legislative task force with a nearly identical mission to that of the first.

“ This state has no idea how closely we just dodged a bullet,” Dietz said.

In the meantime, the Louisiana coalition is helping Smith petition the state to take his name off the sex offender registry. Louisiana law allows people to petition to have their names removed from the registry after 10 years without any new sex crime convictions. Smith expects his case to be approved by the end of the year.

Despite the difficulty of the past 12 years, he said, he’s grateful for the chance to be free from the registry’s restrictions.

“It’s like a breath of fresh air,” Smith said. “I can do stuff that I wanted to do that I couldn’t. Like, go to a football game. Simple stuff like that, I’m going to be ready to do.”

This story was produced in collaboration with KFF Health News. 

KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF — the independent source for health policy research, polling, and journalism.

New global data reveals rising HIV criminalisation amid stalling legal reforms

The HIV Justice Network published new data this week showing a troubling rise in the number of people criminalised for HIV non-disclosure, potential or perceived exposure, or unintentional transmission in 2024 and the first half of 2025. As legal reforms appear to be stalling, discriminatory prosecutions, harsh sentences, and misuse of outdated laws continue to impact people with HIV and the HIV response.

The figures, presented at the 13h IAS Conference on HIV Science (IAS 2025) in Kigali, Rwanda, are drawn from the Global HIV Criminalisation Database. The database documents criminal cases and legal developments involving HIV-specific or general criminal laws worldwide.

In 2024, at least 65 HIV criminalisation cases were reported across 22 countries – up from 57 in 2023 and 50 in 2022. Russia (25 cases) and the United States (11) led the global tally, followed by Uzbekistan, Spain, Argentina, Belarus, Senegal, and Singapore. For the first time, prosecutions were documented in Panama and Uruguay.

The upward trend continued into 2025, with 48 cases reported in just the first six months. Uzbekistan (28) and Russia (9) again accounted for the majority, alongside new cases in the U.S., Canada, and Argentina. However, the actual number of cases is likely much higher, particularly in Eastern Europe, Central Asia, and the United States, where civil society organisations report many cases go undocumented.

“These cases show that HIV criminalisation remains a global crisis,” said Edwin J. Bernard, Executive Director of the HIV Justice Network. “Far too often, people living with HIV are prosecuted not for causing harm, but simply for living with a health condition – often in ways that are unscientific, discriminatory, and deeply unjust.”

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The report highlights the intersection of HIV criminalisation with racism, homophobia, gender-based discrimination, and systemic inequality. In Senegal, for example, prosecutions have disproportionately targeted LGBTQ+ individuals. In the U.S., criminal laws continue to be weaponised against communities of colour, even in cases involving no risk of transmission – such as spitting, or sex with an undetectable viral load.

One of the most alarming cases occurred in South Africa, where a former soldier was sentenced to life plus ten years for rape and attempted murder after failing to disclose his HIV status to a consenting partner – despite no evidence of intent or actual transmission. Advocates warn that such cases equate HIV non-disclosure with sexual violence and undermine decades of public health and human rights gains.

Yet, amidst the setbacks, 2024/2025 also brought some signs of hope. Maryland and North Dakota fully repealed their HIV-specific laws, while Tennessee removed mandatory sex offender registration for HIV-related convictions. Mexico City and Colima repealed vague “danger of contagion” laws, and Ukraine’s parliament voted to remove HIV from its criminal code.

In Zimbabwe, community activism helped block a proposal to re-criminalise HIV transmission. However, a new law was introduced criminalising the deliberate transmission of STIs to children, including HIV – raising fears it could be used against mothers living with HIV, particularly in breastfeeding cases.

Despite these advances, HIV criminalisation remains widespread. A total of 83 countries still have HIV-specific laws, and 23 countries reported prosecutions in this period using either HIV-specific or general laws. The HIV Justice Network warns that without urgent action, the world is unlikely to meet UNAIDS’ target of reducing punitive laws to below 10% of countries by 2030.

“The path forward must be rooted in science, rights, and community leadership,” Bernard said. “We must end laws that punish people for their status, and instead build legal systems that support health, dignity, and justice.”


EPO622 Recent progress and setbacks in HIV criminalisation around the world by Edwin J Bernard, Sylvie Beaumont, and Elliot Hatt was presented at IAS 2025 by Paul Kidd at 13th IAS Conference on HIV Science in Kigali, Rwanda.

 

Criminalization and funding cuts threaten global progress against HIV/AIDS

High-risk HIV groups facing record levels of criminalisation as countries bring in draconian laws

Curbs on LGBTQ+ rights and a halt to US funding may reverse decades of progress in fight to end Aids epidemic, warns UNAids.

People at higher risk of HIV, such as gay men and people who inject drugs, are facing record levels of criminalisation worldwide, according to UNAids.

For the first time since the joint UN programme on HIV/Aids began reporting on punitive laws a decade ago, the number of countries criminalising same-sex sexual activity and gender expression has increased.

In the past year, Mali has made homosexuality a criminal offence, where the law previously only banned “public indecency”, and has also criminalised transgender people. Trinidad and Tobago’s court of appeal has overturned a landmark 2018 ruling that decriminalised consensual same-sex relations, reinstating the colonial-era ban. In Uganda, the 2023 Anti-Homosexuality Acthas “intensified the proscription of same-sex relations”, and Ghana has moved in a similar direction with the reintroduction of legislation that would increase sentences for gay sex.

The crackdown on gay rights comes as the fight against HIV/Aids has been hit by abrupt US funding cuts, which have combined with “unprecedented” humanitarian challenges and climate crisis shocks to jeopardise hopes of ending the global epidemic this decade, UNAids said.

Several groups of people, known as “key populations”, are more likely to be infected with HIV. They include sex workers, gay men and other men who have sex with men, people who inject drugs, transgender people, and those in prisons and other enclosed settings.

In 2025, only eight of 193 countries did not criminalise any of those groups or behaviours, or criminalise non-disclosure of HIV status, exposure or transmission, according to the report.

The number of people infected by HIV or dying from Aids-related causes in 2024 was the lowest for more than 30 years, according to the UNAids annual report, at 1.3 million and 630,000 respectively.

Progress was uneven – ranging from a 56% fall in infections since 2010 in sub-Saharan Africa to a 94% increase in the Middle East and North Africa. But coupled with scientific advances – such as twice-yearly drugs to prevent infection – the world had the “means and momentum” to end Aids as a public health threat by 2030, an internationally agreed goal, it said.

However, that has been “seriously jeopardised” in the early months of this year after sweeping US aid cuts that could undo decades of progress. In January, Donald Trump cut funding that had underpinned much of the global HIV response almost overnight.

The report highlights HIV-prevention services as an area of concern, with many particularly reliant on donor funding. The reported number of people receiving preventive drugs in Nigeria in November 2024 was approximately 43,000. By April 2025, that number had fallen to below 6,000.

Activists say access to prevention will be a particular issue for key populations, who may not be able to access mainstream healthcare due to factors such as stigma or fear of prosecution, but relied on donor-funded community clinics that have now closed.

Key populations were “always left behind”, said Dr Beatriz Grinsztejn, president of the International Aids Society (IAS).

The report is being released before an IAS conference next week in Kigali, Rwanda, where researchers will share data on the impact of cuts.

Modelling by Bristol University calculated that a one-year halt in US funding for preventive drugs in key populations in sub-Saharan Africa would mean roughly 700,000 people no longer used them, and lead to about 10,000 extra cases of HIV over the next five years.

UNAids modelling suggests that without any replacement for funding from US Pepfar (president’s emergency plan for Aids relief), an additional 4m deaths and 6m new infections could be expected globally by 2029.

However, Winnie Byanyima, executive director of UNAids, said 25 of the 60 low- and middle-income countries included in the report had found ways to increase HIV spending from domestic resources to 2026. “This is the future of the HIV response – nationally owned and led, sustainable, inclusive and multisectoral,” she said.

New Zealand: Survey launches to find out how HIV criminalisation laws impact lives

New Zealand’s Outdated HIV Criminalisation Laws Need To Change

New Zealand is falling behind the rest of the world in decriminalising HIV. In Aotearoa people living with HIV can still be criminalised for not disclosing their status, even when there is no risk of transmission, creating barriers to the global goal of ending HIV transmission.

A new nationwide survey launched today is inviting people living with HIV in Aotearoa to share how the country’s outdated criminalisation laws and policies have affected their lives, as calls grow for urgent policy reform. The survey will also be assessing knowledge of the laws and public health pathways for managing HIV transmission.

Burnett Foundation Aotearoa, in partnership with Body Positive, Positive Women Inc and Toitū Te Ao, has launched the anonymous survey to gather insights from people living with HIV about how implementation of the current criminal laws, stigma, and public attitudes related to the management of HIV transmission have impacted their lives, wellbeing, and relationships.

“It is time that our laws and policies get up to speed with science, fairness, and human rights,” says Burnett Foundation Aotearoa Chief Executive Liz Gibbs. “Historically, we have been world leaders in our HIV response, but we are falling behind when it comes to how the law treats people living with HIV.”

“Criminalising people living with HIV doesn’t reduce transmission. It increases fear and stigma, which discourages people from testing and accessing treatment.”

Under the Crimes Act, it is a serious offence to deliberately infect someone with a disease—punishable by up to 14 years in prison—and HIV is the only condition this law is applied to.

Using a condom removes the legal need to disclose, but the law hasn’t been tested for people with an undetectable viral load, where there is zero risk of passing on the virus. New Zealand’s outdated legal system doesn’t reflect this scientific reality.

New Zealand among top HIV criminalisation hotspots

According to international research by the HIV Justice Network, New Zealand ranks among the top 15 HIV criminalisation hotspots in the world. There have been 10 criminal cases per 10,000 diagnosed individuals living with HIV. This places Aotearoa alongside countries like Canada, Russia, and the United States, despite its comparatively low HIV prevalence and small population.

“This kind of data shows how out of proportion our current response is,” says Gibbs. “It’s not just outdated, it’s excessive. And it targets some of the most marginalised and vulnerable people in our communities.”

Globally, HIV criminalisation has been shown to disproportionately affect people who already face systemic inequality, including those impacted by drug use, sex work, migration status, poverty, gender identity, and sexuality. Many prosecutions proceed even when no HIV transmission has occurred, often based on outdated ideas of risk.

Criminalisation a major barrier to HIV elimination

To meet the goals in New Zealand’s National HIV Action Plan and eliminate new transmissions, Gibbs says we must remove legal barriers that punish rather than support people living with HIV.

“We know what actually prevents transmission: testing, treatment, and education, not laws that scare people out of disclosing their status,” she says.

“We have an opportunity to lead the world again, but only if we listen to those most affected by our current legal framework.”

Have your say

The survey is open to anyone living with HIV in Aotearoa and takes around 10 minutes to complete. All responses are anonymous. The results will help shape future advocacy, inform legal reform, and improve access to health services.

Survey link: www.surveymonkey.com/r/NZHIVCRIM
More info: burnettfoundation.org.nz/hiv-criminalisation-survey

Canada: Decades of advocacy ignored as Canada rejects HIV criminalisation law reform

Why is the federal government still refusing to decriminalize HIV?

Advocates have demanded change for decades. Canada’s government says there’s no path forward for legal reform.

Since 1989 in Canada, more than 200 people have faced charges related to HIV non-disclosure. Here, a person can be charged for not disclosing their positive HIV status to someone they’ve had sex with, even if they have no intention of harming the other person, and even if they don’t transmit the infection. While activists have been fighting for nearly a decade to have these laws repealed, the federal government announced last year they would not be moving forward with efforts to decriminalize HIV non-disclosure. Xtra has spoken with the people at the front of the fight for decriminalization—and the people that these antiquated laws affect.

These are their stories.

The phone call

On November 5, 2024, a phone call that didn’t even last five minutes ended almost a decade of work to decriminalize HIV non-disclosure in Canada. Despite previously indicating that the law might be changed, a representative from the Justice Department told advocates that there would be no path forward to reform a set of policies that criminalize HIV non-disclosure in the country.

Never mind that for the past eight years, various promises had been made. Since 2016, Ottawa has acknowledged the overcriminalization of HIV non-disclosure in Canada. This recognition prompted hearings, consultations and studies that advocates had hoped would lead to reforming the country’s criminal code.

Despite not having HIV-specific legislation, Canada has some of the highest numbers of reported cases of HIV criminalization in the world—a burden, advocates say, that is felt disproportionately by LGBTQ2S+, Black and Indigenous peoples.

According to a 2022 report by the HIV Legal Network, from the first prosecution in 1989 until the end of 2020 in Canada, 206 people faced charges related to HIV non-disclosure in 224 separate cases. Of those cases, only the outcomes of 187 cases were known: 70 percent ended in convictions, and 83 of those convictions resulted from a guilty plea, rather than a guilty verdict following trial.

Although HIV non-disclosure prosecutions affect people of all genders in Canada, 89 percent of people charged are men, and nine percent are women. Of all prosecutions, an estimated 22 percent were Black men and 33 percent were Indigenous women.

On the day of the government’s phone call in November, André Capretti picked up the call on behalf of the Canadian Coalition to Reform HIV Criminalization (CCRHC), an organization founded in 2016 that calls on the federal government to engage in legal reform and limit HIV criminalization.

“It was, of course, very frustrating to hear. It felt like we had been taken for a ride and our time was wasted,” he says.

Capretti, who’s also a policy analyst and a lawyer at the HIV Legal Network, says that, at the time, he hadn’t been feeling optimistic, given the delays he and his fellow advocates had experienced while awaiting the federal government’s answer. In a way, he says, the phone call was a form of closure. However, he also felt frustrated—as an advocate but also on behalf of the people who are in the crosshairs of the criminalization of HIV non-disclosure in Canada.

“This is their everyday lived realities, and these are the risks that they face when they are in intimate relationships or choose to engage in sexual encounters with people,” he says.

“If they’re frustrated, disappointed or feel let down, that’s all completely valid.”

The human cost of a cruel policy

Tammy Jones still remembers the afternoon in July 2007 when she was arrested. (Xtra has given her a pseudonym to protect her privacy.) She was doing her chores and affirmations at a recovery home in Abbotsford, B.C., when she heard a knock at the door.

“Tammy Jones?” a police officer asked.

“Yeah,” Jones answered.

“We have a warrant for your arrest.”

The police didn’t explain what crime she’d committed. Jones thought to herself: Was it drug-related? Prostitution? Before going to the recovery house, Jones had worked as a sex worker in Vancouver and had been battling drug addiction.

Months before her arrest, a man with whom she’d had a relationship was diagnosed as HIV-positive. He confronted her and blamed her for transmitting the virus to him. At the time this ex-partner was diagnosed, Jones had been living with HIV for six years. She was on medication to treat her HIV, and sexual contact with him had always involved the use of condoms—her partner, she said, was aware of her positive status. But then, one night, Jones alleges, her ex-partner assaulted her while she was sleeping. He didn’t use a condom.

On the day of her arrest, Jones was driven about an hour away to Vancouver. When she arrived at the police station, she heard the cops saying: “She’s a sex offender.” She was confused by this remark initially, but she soon learned she was being charged with aggravated sexual assault for HIV non-disclosure.

Jones eventually met with a lawyer, who encouraged her to take a plea deal to shorten her sentence from eight years to three. She accepted the deal and was given a statutory release after serving two and a half years. But her guilty plea also meant that her name would be added to the national sex offender registry.

Jones and I first met in Vancouver last spring. While the sun was out, a slight breeze made us shiver. Jones cried as she remembered what had happened during her arrest and eventual release. She told me the lawyer who represented her didn’t put up a fight. She said she didn’t understand the implications of accepting the guilty plea—and didn’t grasp that she’d be registered as a sex offender—until after she got out of prison.

As we sat on a bench in the Olympic Village neighbourhood, Jones spoke so softly that the wind sometimes overpowered her voice. Recalling that day in 2007 and its implications to her life almost two decades later, she said: “They make me out to be this scary person, and I’m not that person. I’m not who they think I am.”

Jones said she feels there’s an irony—and an injustice—to being labelled as a sex offender when, she said, she was sexually assaulted by a family member as a kid, as well as by the man who laid the charges that led to her arrest. She turned to alcohol and drugs to cope with the trauma of both these abuses.

For people like Jones, who’s been on the sex offenders list for almost 20 years now, the brunt of the label reverberates in various aspects of her life, limiting her employment opportunities and holding her from achieving the future she dreams for herself.

Tricky legal ground 

Despite the severity of punishment HIV-positive Canadians can face for non-disclosure, there is no specific law that explicitly prohibits the non-disclosure of HIV status in Canada. Instead, legal precedents have developed through court decisions. Courts have relied on existing criminal offences, such as criminal negligence causing bodily harm and aggravated sexual assault, to convict people who are HIV-positive and who have failed to inform their sexual partner of their status.

While arrests related to non-disclosure date back to 1989, it wasn’t until 1998 when the Supreme Court of Canada ruled that people must disclose their HIV status before engaging in any type of sex with a new partner. Failing to do so, the court ruled, could be interpreted as a form of fraud that invalidates consent. In the court’s eyes, if a person has sex without disclosing their status, that sex is seen as non-consensual, similar to coercion in sexual assault cases.

Capretti, the lawyer at the HIV Legal Network, says that before a case is seen as an act of fraud, it needs to have two elements: proof that a person lies or hides their status, and an element of harm. “There’s physical harm from contracting HIV,” Capretti says. “But the law also considers the risk of exposing someone to HIV, even if they don’t get it, as harm.”

According to him, the legal framework in Canada still relies on outdated understandings of how HIV is transmitted, which can lead to unjust criminalization. He says people with a suppressed viral load pose virtually no risk of transmitting the virus, yet the law still requires disclosure in situations where the actual risk is minimal. This disconnect, he says, leads to unjust charges and perpetuates stigma against those living with HIV.

In more recent history, the 2012 Supreme Court ruling, R. v. Mabior,has shaped how cases of alleged HIV non-disclosure are treated in the country. In this case, a man was charged with nine counts of aggravated sexual assault based on his failure to disclose his HIV‑positive status to nine complainants, although none of them contracted HIV. The Supreme Court ruled in that case that people living with HIV have a legal responsibility to disclose their status if they have a “realistic possibility” of transmitting the virus. (According to the ruling, an HIV-positive person is not required to disclose their status if they use a condom and have a viral load below 1,500 copies/ml.)

This precedent has since been interpreted differently in various parts of the country, Capretti says. For example, in 2018, a directive was issued to limit charges for HIV non-disclosure in the Northwest Territories, Nunavut and Yukon, ending the use of sexual assault laws in these cases; instead, they could be prosecuted on simple assault or other charges like criminal negligence. It also specified that individuals with a suppressed viral load (under 200 copies/ml) should not be prosecuted for HIV exposure, as they are unlikely to transmit the virus. Cappreti says using simple assault and other charges, as opposed to a sexual assault charge, is important to continue to fight stigma related to HIV.

 “The whole country’s legal landscape has failed to evolve alongside the scientific advances in HIV research.”

In Ontario, B.C., Alberta and Quebec, prosecutors have been instructed not to charge individuals with a suppressed viral load, whether or not they used a condom. Policies differ on how long a person’s viral load must be suppressed—Ontario requires at least six months, while B.C., Quebec, and Alberta allow four to six months. There is no minimum time limit in the three territories, and information from other provinces is limited.

“The state of the law in Canada is inconsistent,” Capretti says. “It means that someone in Ontario would have different legal obligations than someone in Manitoba, someone in New Brunswick, or someone in British Columbia.” If a person travels outside their home province, they would be subject to the rules of the province in which sexual contact occurs.

On top of this, he says the type of sex a person has is significant because of the different levels of risk associated with HIV transmission. A partner who is receptive during anal sex, for example, has a higher risk of contracting HIV than someone who engages in oral sex.

“That’s relevant because certain provinces have prosecutorial directives,” Cappretti says. He gives B.C. and the Territories as an example. There, someone who has oral sex without disclosing their status would not be prosecuted.

These policy differences mean that while the whole country’s legal landscape has failed to evolve alongside the scientific advances in HIV research, some regions lag further behind than others.

A changing scientific landscape

While HIV prevention and treatment have greatly improved in the past decade, non-disclosure laws have not moved at the same pace. Daily antiretroviral medications now allow those who take them to lessen the amount of HIV in the blood to the point that the virus is undetectable through testing—and therefore untransmittable to anyone else. When taken correctly, HIV drugs that prevent infection, such as pre-exposure prophylaxis (PrEP) and Post-Exposure Prophylaxis (PEP), can also help those who are exposed to HIV avoid contracting the virus. In May last year, Health Canada approved APRETUDE, the first long-acting injectable for HIV prevention. Earlier this year, Quebec became the first province to offer injectable PrEP for free.

These massive scientific advancements have saved lives and transformed what it means to be diagnosed with HIV today. Still, Canada’s judicial system largely fails to take the usage of these drugs into account.

Capretti says this ultimately undermines public health by discouraging testing and treatment. In the recent national HIV estimates, 65,270 Canadians are living with HIV. Of this number, it’s estimated that around 10 percent don’t know their status.

HIV activist Muluba Habanyama says criminalizing HIV non-disclosure impacts treatment in Canada. She warns that fear of criminal charges may lead people to avoid testing. “If you don’t want to risk criminalization, you might not want to know your status.”

Habanyama was born with HIV and has long fought against HIV stigma. She recalls being eight when her mother told her: “You’re Black, you’re female and you’re living with HIV. You have to work three times [harder] to get half of what others have.”

The criminalization of HIV non-disclosure, according to Habanyama, creates a dilemma where people may avoid testing to escape legal risks, which in turn harms public health efforts. “It’s sad that people feel they have to pick one or the other,” she says. “I don’t think we should be a country that promotes that.”

Removing this barrier to testing is particularly urgent, as HIV is on the rise in Canada. According to the most recent data, 1,848 new infections occurred in Canada in 2022, a 15 percent increase from 2020. That means five people were infected with HIV in the country each day.

“On the one hand, the public health response is encouraging people to get tested, and then on the other hand, it’s putting them in jail.”

Canada has failed to meet its testing, treatment, and prevention targets. The country initially pledged to achieve a 90-90-90 target by 2020, meaning 90 percent of people living with HIV know their status, 90 percent of HIV-positive people have access to treatment and 90 percent of people receiving treatment are undetectable. However, by 2022, Canada had still not met those goals. The new target is to reach 95-95-95 by 2025.

Brook Biggin, director of Education, Knowledge Mobilization, and Policy at the Community-Based Research Centre (CBRC), an organization that promotes the health of people of diverse sexualities and genders, says the government’s investment in reaching undiagnosed individuals is a major focus of the public health response in Canada.

“On the one hand, the public health response is encouraging people to get tested, and then on the other hand, it’s putting them in jail. And so it’s contradictory,” he says. “Until that’s resolved, I think Canada’s HIV response will continue to be hobbled.”

How criminalization affects LGBTQ2S+ people 

Biggin got involved in HIV awareness advocacy shortly after being diagnosed with HIV in 2011. Eight years later, he spoke in front of the Standing Committee on Justice and Human Rights during one of its meetings to study the criminalization of HIV non-disclosure.

“I do not believe that we would have the rights that we have today as queer and trans people if it weren’t for people living with HIV,” he says. “I think it’s incumbent on us as queer people who gain so much from people living with HIV over the years to return the favour.”

In the 2022 report from the HIV Legal Network examining key trends and patterns of HIV criminalization in Canada, 27 percent of all the HIV non-disclosure cases from 1989 to 2020 involve gay, bisexual and other men who have sex with men (GBMSM). GBMSM are still the demographic that makes up the highest proportion of new HIV cases in the country, and according to the report, they also represent the highest risk of prosecution.

“I see criminalization as unhelpful and counterproductive to all the advances that have been made in science,” says Sean Hosein, science and medicine editor at CATIE, a national organization that aims to strengthen Canada’s response to HIV, hepatitis C and drug use.

Hosein was working in Toronto as a community educator when the AIDS crisis erupted. He turned his attention to HIV education and advocacy in 1986, motivated by the impact of HIV on his friends and community. Hosein watched some fall ill to the virus, and others die. “I have lost people, and it still hurts,” he says. “I want to try and make sure that doesn’t happen to other people.”

Biggin would like to see more people respond this way. “It’s a shame that so many years have passed and that we, as a community, have, in some ways, been relatively silent about this injustice that’s facing people living with HIV,” he says.

“Leaders in the early days of the AIDS crisis demonstrated that when something’s not right, when marginalized people within our communities are struggling, we have to respond.”

A string of broken promises 

On June 3, 2011, Chad Edward Clarke’s family picked him up as he was released from prison in Ontario. He walked right past his teenage son. He didn’t recognize him; he had grown taller since the last time he saw him almost four years prior.

“Dad!” his son called. “What are you doing?”

Clarke had been incarcerated for more than three years after a former partner said she contracted HIV from him. He was charged with aggravated sexual assault and was put on the national sex offender registry for life.

His uncle and son had come to pick him up, and the trio drove away from the prison along the highway. As he looked around the areas they passed by, Clarke started to cry—it was the first time in more than three years that he saw the wide roads from a vast window and not through the peephole of the van they used to transport him on the way to court or the hospital.

Clarke’s uncle took him and his son to some of their favourite spots in Toronto, including a sandwich place he had missed and a harbour by Lake Ontario. As they stood by the water, Clarke and his son hugged. They skipped rocks. Clarke accidentally threw his ring, a Celtic knot, a homage to his Irish heritage, right into the lake.

“I guess it’s time for new beginnings, Dad,” his son said.

He was right; it was a new beginning in Clarke’s life. That year, he promised to fight so that other people would not experience what he and his family had been through.

Thirteen years later, in April 2024, Clarke spoke to me from his home in Chatham, Ontario. He told me about his family and how his home keeps him grounded. He then showed me a new tattoo he said he had just gotten the day before: a red ribbon that passes through another tattoo of a jail cell.

“It’s the cell I was in,” he said. “The red ribbon is the blood that runs through my body, which caused me to experience injustice in Canada.”

Since 2011, Clarke has become an advocate, sharing his story throughout his journey. Nine years ago, he even testified in front of the justice committee about the effects of the criminalization of HIV non-disclosure on him. He said he’s seen multiple cabinet shuffles and different ministers of justice come and go, yet there’s not much political will to change.

In a run-in with former minister of justice David Lametti in Ottawa, Clarke said he told the minister: “I’m tired of the lip service, ‘When are you going to fix this and give me my life back?’”

Clarke said the minister acknowledged his remark and said only: “Those are strong words, Chad.” That acknowledgment did not translate into meaningful action, Clarke said, which fuelled his determination to continue fighting for justice and reform in the system.

Being on the national sex offender registry has limited Clarke’s ability to find full-time employment and move through life. It’s also affected his family, as well as his children’s mental health. He knows sharing his story is essential, but he admits reliving it puts his mental health in a regressive state too.

“How many more times do I have to pull this scab off?” he asks.

In 2019, after meeting with scientists, researchers, and legal and public health experts, the House of Commons Standing Committee on Justice and Human Rights released a report that recommended the federal government limit the use of criminal law in dealing with HIV non-disclosure. It suggested that HIV non-disclosure should not be an offence punishable by sexual assault charges. The committee also recommended that the government limit the prosecution to extreme cases where it can be shown that a person intentionally transmits HIV with malicious intent.

In October 2022, the Department of Justice launched a consultation website to solicit input on possible criminal law reforms related to HIV non-disclosure—part of the federal government’s first 2SLGBTQI+ Action Plan, launched in August of that year.

The following June, the department released the result of the consultation in a report titled What We Heard. In an online survey responded to by 980 people, 85 percent agreed that the Criminal Code should be amended to ensure that sexual assault offences cannot be used where the only issue in the case is HIV non-disclosure, demonstrating the public’s will to reform the law.

Capretti says that after the release of What We Heard, the coalition had direct conversations with then justice minister Lametti and his policy advisors to discuss the decriminalization of HIV non-disclosure cases in Canada. He says it felt like the process was moving forward at the time. But things stalled after a 2023 cabinet shuffle, which saw Lametti removed from the Justice file and replaced by Arif Virani.

According to Cappretti, after Virani stepped in at the end of July 2023, the federal government scheduled—then postponed—multiple meetings with the CCRHC.

In May 2024, Virani finally met with the CCRHC for the first and only time. Advocates say it seemed like the meeting was an “appearance for the sake of an appearance” and still didn’t have any commitment to the promise of law reform.

Almost six months later, in November, Cappreti, on behalf of the coalition, received the call from the Justice Department saying there was no path forward in decriminalizing HIV non-disclosure in Canada.

“After years of promises and commitments, we have been told by the Canadian government that there is no longer a path forward on law reform as the federal election looms. Instead of demonstrating bravery and finally ending criminalization, our political leaders have shut down progressive reforms,” Alexander McClelland, chair of the CCRHC, said in a press conference weeks after the CCRHC received the phone call.

“They have told us they are not moving forward on evidence-based approaches, that they are not moving forward on findings from their consultations, and that they are not going to change this context, which puts the over 65,000 people living with HIV in this country at risk, who are currently made to live their lives in a context of fear and uncertainty and violence.”

Shortly after the press conference, Xtra contacted then minister of justice Virani to ask what he would say to the advocates who felt the federal government had abandoned years of discussion and collaboration. Virani’s spokesperson, Chantalle Aubertin, said via email at the time: “Minister Virani remains committed to listening and working toward evidence-based changes within the Canadian criminal justice system. This is a sensitive and deeply important matter that has required thoughtful input from all affected groups.

“Regrettably, Conservative obstructing and filibustering through privilege motions this fall has disrupted much of our Government’s ability to move forward on important priorities. This has forced us to make difficult decisions about what can be advanced in this session. We deeply appreciate the patience and resilience of advocates and want them to know that their efforts continue to inspire the work ahead.”

Various emails between the coalition and the federal government, however, show multiple attempts to meet the then minister before the fall of 2024 and before the federal NDP withdrew its support for then prime minister Justin Trudeau’s minority government in September of last year.

Since the Liberals won a minority government under Prime Minister Mark Carney, no further movement appears to have been made this spring.

When asked whether Sean Fraser, Canada’s new minister of justice, will pick up this file and continue looking into the issue that was dropped in the last Parliament, Aubertin, who still works as a spokesperson with the Justice Department, says Fraser has not yet been “fully briefed” on the file. She said that the department will “follow up as soon as [they’re] in a position to offer more detail.” They declined to provide any more information.

Capretti points out that the new Liberal justice minister already has access to the same resources his predecessors have. “We’ve come up with different proposals, we’ve come up with ideas. So he’s coming to the position with much of the work already done,” Capretti says.

“We’ve done a lot of groundwork. He’s not starting from zero, and we shouldn’t act like we’re starting from zero.”

A lasting legacy

For as long as the government fails to take action, Canadians will continue to suffer.

Back in Vancouver on that day in April 2024, Tammy Jones gave a small smile when asked how she’d been doing these days.

She said she’d been focused on improving her life for years, going to therapy and building bridges to rekindle relationships with her children. An Indigenous woman, she said she also tried traditional medicines and sweat lodges. But, amidst all the progress, one thing still haunts her: being listed on the sex offenders’ registry. Most devastating is the way it prevents her from strengthening her bond with her family. The “sex offender” label, she said, feels like a firm grip that keeps holding her to a past she doesn’t want to define her future.

“I’m supposed to meet my niece this weekend, and she has a daughter,” she said. “I’m kind of nervous because of my [sex offender] label.”

In the long term, Jones said she hopes to take her case to the Supreme Court to try to clear her name. She said it would be an uphill battle, but she told me she believed it was worth the fight for her freedom.

She said she’s not losing hope that one day she’ll just be able to be herself: a proud Indigenous woman, a mother and someone not defined by a harmful label.

In that future, she’s just Tammy, and Tammy is enough.