About Us

The HIV Justice Network is a global information and advocacy hub for individuals and organisations working to end the inappropriate use of the criminal law to regulate and punish people living with HIV.

Mission

The HIV Justice Network’s mission is to collate, create and disseminate information and resources enabling individuals and communities to effectively advocate against inappropriate criminal prosecutions for HIV non-disclosure, potential or perceived exposure and transmission.

Goals and objectives

The principal goal of the HIV Justice Network is to connect, inform, educate, support and empower individuals and communities advocating for a fairer, just, rational, proportionate and limited use of laws, policies and practices to regulate and punish people living with HIV.

This will result in advocates who are better informed, empowered and connected and, therefore, more able to challenge and influence decision makers in order to: repeal or modernise unfair laws; ensure that any use of existing laws is limited and fairly applied; and present alternatives to a punitive, regulatory approach that benefits both public health and human rights.

The HIV Justice Network has three main objectives:

  1. To monitor international developments regarding laws and prosecutions that criminalise HIV non-disclosure, potential or perceived exposure and transmission, and how criminal justice actors and the media deal with individual cases, to better understand the ‘who, what, where, why and how’ of laws, policies and practices that inappropriately regulate and punish people living with HIV.
  2. To connect local, national, regional and global stakeholders, sharing information and resources to allow for targeted research and discussion of key issues, and identification of best practice models.
  3. To create practical resources to enable advocacy, empowerment and challenge through persuasive and pragmatic policy development and effective communication strategies.

Who are we?

Edwin

Edwin J Bernard, Global Co-ordinator

British-born writer and advocate, Edwin J Bernard, has been living with HIV since 1983. He began a career in journalism in 1985 and has been writing about HIV since 1987.

Edwin launched the HIV Justice Network (under its former name HIV Action – the HIV Anti-Criminalisation Network) at the satellite meeting ‘Criminalisation of HIV Exposure and Transmission: Global Extent, Impact and The Way Forward’ prior to the International AIDS Conference in Vienna in July 2010.

Edwin also co-ordinates HIV JUSTICE WORLDWIDE, a collaboration of seven civil society organisations who have been working together formally to end HIV criminalisation globally since January 2016.

Formerly an editor at NAM, Edwin has greatly contributed to global knowledge of HIV criminalisation, writing extensively on the issue including two books for NAM – ‘Criminal HIV Transmission’ (2007) and ‘HIV and the Criminal Law’ (2010).

Since 2007 he has been documenting and analysing laws, laws enforcement, access to justice and advocacy developments in his Criminal HIV Transmission blog, which is now fully incorporated into the HIV Justice Network website.

Between 2011-13 he worked as a consultant with UNAIDS on their 2013 guidance note on HIV criminalisation and also works closely with the Global Network of People Living with HIV (GNP+) on their Global Criminalisation Scan.

In December 2011, Edwin was named by POZ Magazine as one of the few non-Americans included in the POZ 100: “people, things and ideas we love”.

In February 2012, Edwin co-ordinated the Oslo Declaration on HIV Criminalisation which, to date, has more than 1750 supporters in 119 countries.

He also works closely with his life partner, Nicholas Feustel (HJN’s video advocacy consultant), to produce the educational and advocacy documentaries on HIV criminalisation, including Doing HIV Justice and More Harm Than Good.

Email: edwin(at)hivjustice.net

SallySally Cameron, Senior Policy Analyst

Based in Queensland, Australia, Sally has been working on issues relating to HIV, gender, community development and capacity building for many years, most recently as HIV Education and Health Promotion Officer – Policy at the Australian Federation of AIDS Organisations (AFAO).

Sally has worked on many important HIV criminalisation publications over the years, including as author of ‘HIV, Crime and the Law in Australia: Options for Policy Reform – a law reform advocacy kit’ for AFAO; co-author of The Global Criminalisation Scan 2010: Documenting trends, presenting evidence for the Global Network of People Living with HIV (GNP+); co-editor and author of The Criminalisation of HIV in Australia: Legality, Morality Realityfor the National Association of People Living with HIV (NAPWA); and author of the Guide to Australian HIV Laws and Policies for Healthcare Professionals‘ for Australasian Society for HIV Medicine (ASHM).

Sally has worked closely with HJN for a number of years, including as co-author, with Edwin J Bernard, of both the Advancing HIV Justice and Advancing Justice 2 reports.

Email: sally(at)hivjustice.net

SylvieSylvie Beaumont, Research/Outreach Co-ordinator

Sylvie has been involved in HIV since the late 80s when she started work as a volunteer to translate some of the vital information coming out of the English-speaking world into French.

She eventually joined NAM/aidsmap in the 90s as international editor and worked on the development of a multilingual platform aiming to facilitate networking, and information sharing between HIV organisations across the world.

In 2014, she became coordinator of ReShape, a London-based independent HIV think tank and joined the HIV Justice Network in April 2016.

She also carries on working as a translator specialising in HIV and remains involved in the development of knowledge sharing and content distribution platforms on a variety of projects.

Email: sylvie(at)hivjustice.net

243934_2106434462281_1660680_oNicholas Feustel, Video Advocacy Consultant

Filmmaker Nicholas Feustel is the managing director of Hamburg-based georgetown media. His films include the Adolf Grimme Award-nominated documentary, I Want To Live, Don’t I?

He has been working with the HIV Justice Network since 2010, when he produced the video for the satellite meeting ‘Criminalisation of HIV Exposure and Transmission: Global Extent, Impact and The Way Forward’ held just prior to the International AIDS Conference in Vienna.

Since then, Nicholas has produced many videos for the HIV Justice Network, including one supporting the Oslo Declaration as well as the documentaries Doing HIV Justice and More Harm Than Good.

Email: nick(at)hivjustice.net

Lisa HeadshotLisa Power, Chair, Supervisory Board

Lisa Power has been involved in HIV activism since the start of the epidemic.

She spent 14 years on London’s Gay Switchboard, 17 years with Terrence Higgins Trust (becoming Director of Policy) and was Secretary General of the International Lesbian & Gay Association. She was also a founder of Stonewall, the highly successful UK LGBT lobbying organisation.

Lisa has spoken and published research on HIV criminalisation and on other legal barriers to HIV testing and treatment. She became a Member of the Order of the British Empire for services to sexual health and to the LGBT community in 2011.

RaoulRaoul Fransen, Secretary/Treasurer, Supervisory Board

Raoul Fransen-dos Santos is senior policy adviser at International CIvil Society Support (ICSS).

He has been involved in a wide range of programmes supporting people living with HIV and AIDS globally since 1993. As a volunteer, he has been involved in establishing numerous programmes providing antiretroviral treatment and he currently serves on the board of several foundations supporting orphans and vulnerable children in sub-Saharan Africa.

As one of the co-founders of Young Positives and the HIV Young Leaders Fund, he contributed to building new and sustainable leadership in the HIV response among young people most affected by HIV. He addressed the Bangkok International AIDS Conference as a plenary speaker and acted as interim International Coordinator and CEO of GNP+. He is a guest lecturer on HIV, medicine, public health and population at Columbia University, Mailman School of Public Health, Maastricht University and Leuven University.

Raoul studied Health Sciences at the Maastricht University and holds a master’s degree in public health. Before joining the ICSS team, he also worked at the Dutch NGOs Aids Fonds and STOP AIDS NOW! focusing on young peoples’ issues and access to HIV treatment and care.

Website credits

Designed and developed by Kieran McCann and Thomas Paterson, NAM.

Registered office

Stichting HIV Justice (HIV Justice Foundation). Eerste Helmersstraat 17 B 3, 1054CX, Amsterdam, The Netherlands.

Funders

The HIV Justice Network is supported by a grant from the Robert Carr civil society Networks Fund provided to the HIV Justice Global Consortium.

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The HIV Justice Network is also grateful to The Monument Trust for its generous support between 2012-15.