Announcing Living 2024:
The People Living with HIV Pre-conference at AIDS2024!

As we commemorate World AIDS Day, a coalition that so far includes: the Global Network of People Living with HIV (GNP+), the International Community of Women Living with HIV (ICW), the Global Network of Young People Living with HIV (Y+ Global), the HIV Justice Network (HJN), AIDS Action Europe (AAE), and the European AIDS Treatment Group (EATG) are delighted to announce our plans to host the People Living with HIV Pre-conference at AIDS2024.

Living 2024 is planned for 20th and 21st July 2024 ahead of the AIDS2024 conference in Munich.

Looking back to 1983, when the very first gathering of people living with HIV developed the Denver Principles, setting the path to the greater involvement, engagement and leadership of people living with HIV in the AIDS response, we are committed to sustain that legacy and make Living 2024 a platform for people living with HIV and our close allies and partners to connect, and strengthen global solidarity for community leadership in the AIDS response.

Living 2024 will be organised under the theme, ‘‘Communities leading: advancing health, dignity, equity”.

This is the first time since 2016 that the global community of people living with HIV in all our diversities will meet in person to reflect on the multiple socio-political challenges faced by people living with HIV that continue to limit the civic space needed for our advocacy, as well as the inequalities that fuel stigma, discrimination and criminalisation.

We plan to build power together and identify opportunities to strengthen access to affordable and optimised treatment and diagnostics including for addressing the unique challenges of ageing with HIV.

Living 2024, is also an opportunity for people living with HIV and affected communities to come together to reflect, re-imagine and define the future of the HIV movement, as well as our place within the broader global health and development platforms in shaping the HIV sustainability plans beyond 2030.

The organisers of Living 2024 call on countries and decision-makers to refocus, recommit, and ensure that communities lead. AIDS isn’t over, our lives and dignity are still under threat, and stigma, discrimination and criminalisation still prevent us from fully benefiting from the remarkable progress of HIV science.

As we prepare for this crucial convening, we invite other networks, communities, partners, and potential funders to join us in making this event successful and historic. In the coming weeks, we will share more details. For any inquiries please reach out to us on email: living2024@gnpplus.net

Download this press release as a pdf

What do our HIV Justice Academy graduates think of the HIV Criminalisation Online Course?

The HIV Criminalisation Online Course is the centrepiece of our free online learning hub, the HIV Justice Academy, which launched just over a year ago.

More than 500 HIV justice advocates from around the world have since enrolled in the HIV Criminalisation Online Course. Those who have completed the course – and told us their thoughts in the end-of-course survey – are extremely positive about the experience, finding it relevant, interesting, and engaging. They especially liked the video content and personal testimonies which they tell us brought the issues to life. And we heard from both beginners and experts alike that the course was pitched right for them – no mean feat!

“Although I have been working on HIV discrimination for years, it was spectacular to refresh the memory,” wrote one. “The course met my expectations fully…now I really feel strongly equipped to continue doing my community work,” said another. “The course took a holistic approach to explaining HIV criminalisation. It lends legal, scientific, and social perspective, it also went further to touching on how I could be an advocate,” said a third.

One recent Academy graduate is HIV advocate and HIV criminalisation survivor, Lashanda Salinas, from the US state of Tennessee. She told us that the HIV Criminalisation Online Course “helped me learn things that I didn’t know, including how people are criminalised in other countries.” She also tells us that she found the course’s comprehensive Glossary and the Academy’s Resource Library “amazing and helpful”.

Like all the advocacy tools and resources contained within the HIV Justice Academy, the HIV Criminalisation Online Course is free to all, and available in English, French, Russian and Spanish.

The course can be done at your own pace, and you will receive a certificate of completion once you have passed the end-of-course test.

We’re delighted that Lashanda and all the other graduates of the HIV Justice Academy’s HIV Criminalisation Online Course have learned new information and gained new skills as we work together to achieve HIV justice.

Do you know someone who might benefit from the HIV Criminalisation Online Course, or the other resources in the HIV Justice Academy – our Action Toolkits and Resource Library? Why not share this link with them today: academy.hivjustice.net

New HIV JUSTICE WORLDWIDE website now live!

The new website for the HIV JUSTICE WORLDWIDE (HJWW) coalition is now online, in four languages – English, French, Russian, and Spanish.

HJWW is an international coalition working to shape the discourse on HIV criminalisation, as well as share information and resources, network, build capacity, mobilise advocacy, and cultivate a community of transparency and collaboration.

The HIV Justice Network serves as the secretariat, co-ordinating a global work plan; monitoring laws, prosecutions, and advocacy; providing tools and training for effective advocacy and communications; and connecting and convening a diverse range of stakeholders. With this structure, each coalition member can achieve more mission-aligned impact through their engagement in HJWW.

HJWW was founded in March 2016 during a meeting in Brighton, UK, that was funded by a grant from the Robert Carr Fund. Since then, we have expanded from seven founding partners to our current fourteen coalition members, with more than 130 organisational supporters from around the world. You can see our collective impact by visiting the Milestones page.

The new website – optimised for mobile screens as well as computers and tablets – reflects the work of our expanded coalition. It also provides information and links to websites and key resources explaining what HIV criminalisation is, why we care so much about it, and how you can stay informed and show your support.

Visit and share the new website today. After all, we won’t end AIDS as a public health threat by 2030, or end HIV-related stigma, discrimination and criminalisation without HIV JUSTICE WORLDWIDE!

IAS 2023: Five-year impact of Expert Consensus Statement – poster published today

Today, 24th July, at the 12th IAS Conference on HIV Science on Brisbane, we presented our research findings on the five-year impact of the ‘Expert Consensus Statement on the Science of HIV in the Context of Criminal Law’.

Click on the image above to download the pdf of the poster

Tomorrow, 25th July, we will publish the full research report and discuss the findings on our live webshow, HIV Justice Live!

Hosted by HJN’s Executive Director, Edwin J Bernard, the show will include a discussion with the report’s lead author, HJN’s Senior Policy Analyst Alison Symington, as well as interviews with Malawian judge Zione Ntaba, Taiwan activist Fletcher Chui, and SALC lawyer Tambudzai Gonese-Manjonjo on the Statement’s impact.

We’ll also hear from some of the Expert Consensus Statement’s authors, including Françoise Barré-Sinoussi, Salim S Abdool Karim, Linda-Gail Bekker, Chris Beyrer, Adeeba Kamarulzaman, Benjamin Young, and Peter Godfrey-Faussett.

Ugandan lawyer and HJN Supervisory Board member Immaculate Owomugisha will also be joining us live from the IAS 2023 conference where she is serving as a rapporteur, to discuss the Statement’s relevance today.

HIV Justice Live! Episode 5: Bringing Science to Justice will be live on Facebook and YouTube on Tuesday 25^th July at 3pm CEST (click here for your local time).

Coming soon:
HIV Justice Live! Episode 5: Bringing Science to Justice

Five years ago, twenty of the world’s leading HIV scientists published the ‘Expert Consensus Statement on the Science of HIV in the Context of Criminal Law’ to address the misuse of HIV science in punitive laws and prosecutions against people living with HIV for acts related to sexual activity, biting, or spitting.

More than 70 scientists from 46 countries endorsed the Expert Consensus Statement prior to its publication in the Journal of the International AIDS Society (JIAS). The Statement was launched on 25^th July 2018 at AIDS 2018, with the press conference generating global media coverage.

Building upon our initial 2020 scoping report, we recently undertook further extensive research to examine the impact of the Expert Consensus Statement in the five years since its publication.

On 25^th July 2023 – exactly five years to the day of the original launch – we will not only be presenting our findings at the 12th IAS Conference on HIV Science (IAS 2023), we will also be launching the five-year impact report during our live webshow, HIV Justice Live!

Ugandan lawyer and HJN Supervisory Board member Immaculate Owomugisha will also be joining us live from the IAS 2023 conference in Brisbane, Australia where she is serving as a rapporteur, to discuss the Statement’s legacy and relevance today.

There will be opportunities to let us know the impact the Expert Consensus Statement has had in your advocacy and to ask questions live, so please save the date and time.

HIV Justice Live! Episode 5: Bringing Science to Justice will be live on our Facebook and YouTube pages on Tuesday 25^th July at 3pm CEST (click here for your local time).

HJN’s Executive Director remarks
to the UNAIDS Board (PCB)

These remarks were made during the thematic session on reducing health inequities through tailored and systemic responses in priority and key populations especially transgender people, and the path to 2025 targets.

The HIV Justice Network is a community-based NGO leading a co-ordinated global response to HIV criminalisation. We’ve have heard so far about many different structural inequalities but not so much about HIV criminalisation, also covered in the background note, which disproportionately affects key populations, including transgender people, who are already criminalised or otherwise targeted by discriminatory legal systems and policies.

In fact, over 90 countries have criminal laws – based on stigma, not science – that single out people living with HIV based on our HIV-positive status. Another 40 or so countries have applied general criminal laws to unjustly prosecute and imprison people with HIV for acts that cause no risk, no harm or for which there is scant proof of either.

HIV criminalisation selectively scapegoats people living with HIV for a collective failure in HIV prevention policy including the responsibility of governments to create supportive and enabling legal environments for HIV prevention in the first place.

I last attended the PCB 12 years ago as a journalist highlighting the injustices of HIV criminalisation, which at the time was mostly overlooked as a significant legal barrier to the HIV response.

I return to the PCB as the HIV Justice Network’s Executive Director, financially supported by the Robert Carr Fund for civil society networks. Thank you to the governments that support the Fund, and for recognising that community-led global and regional networks of PLHIV and KPs are necessary and irreplaceable partners.

In the intervening years some progress has been made but far too many unjust laws continue to impact far too many people living with HIV, including trans people, gay men and other men who have sex with men, people who use drugs, sex workers and women and girls.

Today, I call on all member states that still have punitive and harmful laws that single out people living with HIV (and that’s almost all of you) to fulfil the commitments most of you made in the 2021 Political Declaration.

It would make our work so much easier if you returned from Geneva to persuade your own governments to do the right thing: either fully fund the Unified Budget, Results and Accountability Framework (UBRAF) or – the cheaper option – get rid of your own ineffective, counterproductive, punitive, discriminatory laws once and for all so we can finally achieve HIV JUSTICE WORLDWIDE!

Our 2022 Annual Report
A Turning Point for HIV Justice

Today, with the publication of our Annual Report 2022 – A Turning Point for HIV Justice, we look back at our achievements in 2022.

The report is published by the HIV Justice Foundation, an independent non-profit legal entity registered in the Netherlands as Stichting HIV Justice to specifically serve as the fiscal organisation for the HIV Justice Network (HJN) and other related activities.

A turning point for HIV Justice

HJN’s Executive Director, Edwin J Bernard, says: “Looking back on all that happened in 2022, we are cautiously optimistic that the year will be seen as a turning point in the global movement to end HIV criminalisation. We celebrated promising developments in case law, law reform and policy in many countries and jurisdictions throughout the year, building on the momentum of 2021. Although there is much more work yet to do, it’s clear that progress is being made — thanks primarily to the leadership of people living with HIV.”

Richard Elliott, who was appointed Chair of the Foundation’s Supervisory Board in March 2022, adds: “It is truly encouraging to reflect on what has been accomplished by this organisation, and the partners and allies it has supported and mobilised in virtually every region of the world in the past year. From supporting local advocates in multiple countries to a new edition of our flagship report on the state of HIV criminalisation globally, from high-profile media advocacy to the launch of the extraordinary multilingual learning resource that is the new HIV Justice Academy, HJN is building a movement and making a difference.”

A global impact

HJN was a co-founder, and is the secretariat for, the HIV JUSTICE WORLDWIDE (HJWW) coalition. Much of the work undertaken by HJN and the HJWW coalition is funded by the Robert Carr Fund (RCF) for civil society networks. In 2022, HJN was fortunate to receive two RCF grants, serving as lead of both consortia. As such, HJN had ultimate responsibility for the delivery, financial management and reporting obligations related to the grants.

By providing technical assistance and grants, these consortia were able to continue to nurture and support the development of new national and regional networks and expand the capacity of existing ones. Throughout 2022, HJN oversaw the distribution of small grants through our consortium partners working in Eastern Europe and Central Asia, Francophone Africa, Anglophone Africa, and Latin America and the Caribbean.

Looking to the future

Did we turn the corner in 2022? “One thing we know for sure is that changing hearts and minds with respect to HIV criminalisation is a long road with many ups and downs along the way,” says Edwin J Bernard. “We know that important progress was made in 2022 and we face 2023 and beyond with fresh analysis, new tools, and a renewed spirit of solidarity.”

If 2022 was a turning point in the global movement to end HIV criminalisation, achieving HIV justice will depend not only on sustaining this work but also moving forward at an even faster pace.

“I wish to thank our funders who have seen the importance of this work,” says Richard Elliott. “As an activist who has been involved in resisting HIV criminalisation for years before HJN was created, I am delighted to see the vision of a global movement being realised. HJN has been the catalyst for that movement. It’s why I’m pleased and proud to support this organisation — and I hope you will too.”

Links

Annual Report 2022 – A Turning Point for HIV Justice

Support HJN’s work with a donation

New HIV Justice Academy content: Lessons from the Central African Republic’s HIV law reform success

In the mid-2000s, many countries across Africa adopted HIV laws. Many of these laws contained important protections covering discrimination, privacy, and access to medications. Unfortunately, they also included overly broad and ill-informed HIV criminalisation provisions.

The Central Africa Republic (CAR) adopted an HIV law in 2006 which not only criminalised HIV non-disclosure, exposure or transmission, it also required people living with HIV to undergo treatment as prescribed by a doctor and engage in protected sex and an obligation to disclose their HIV-positive status to sexual partners.

Given the significant problems with these aspects of the law, multiple law reform attempts were made but none were successful until a new law – Law 22-016 on HIV and AIDS in the Central African Republic – was finally enacted on 18 November 2022.

How did it happen? What changed? Why was the law finally reformed?

Christian Tshimbalanga is a lawyer from the Democratic Republic of Congo with many years’ experience working on human rights and HIV in Africa. Through his work with UNAIDS, Christian provided critical support to the law reform process following it through until Parliament voted on the law. Cécile Kazatchkine (Senior Policy Analyst at the HIV Legal Network) asked Christian to share lessons learned to help others working to reform problematic HIV laws.

Their 25 minute, French-language audio conversation is now available as an additional case study in Chapter 5 of the HIV Justice Academy’s free HIV Criminalisation Online Course: How to advocate against HIV criminalisation. A translated transcript of the conversation is also available in the English, Spanish and Russian version of the course.

Christian’s role was to accompany the process until the law was voted on in Parliament. Several elements of Christian’s account stood out for us:

In his role as an UNAIDS representative and technical partner, Christian was able to devote significant time to the law reform process, monitoring what was happening and pushing the bill through each stage of the process. Having a dedicated person on the ground to accompany the legislative process on a day-to-day basis was critical to the success.
Civil society was a key partner. The Central African Network of People Living with HIV (RECAPEV) and the Central African Network on Ethics and Rights (RCED) pushed hard for the law to be revised. UNAIDS provided them with a small amount of financial support which enabled them to increase their capacity to sustain this advocacy.
Local partners and international organisations were also partners in the law reform efforts, including the National AIDS Council (CNLS), the Ministry of Health and the Minister of Justice, as well as UNDP, UNAIDS, and the French Red Cross (the principal recipient of Global Fund funding in CAR).
A memorandum outlining the new bill was drafted by various stakeholders including civil society. It informed parliamentarians about the relevant public health and human rights issues and the scientific evidence related to HIV.
Following the example of a previous forum in Madagascar on a draft law on sexual and reproductive health, a forum was organised for (primarily male) parliamentarians and their (female) spouses. Because issues of this intimate nature are often discussed in the home, involving spouses was strategic. Several people living with HIV opened the forum by talking about their lived realities and the persistence of HIV-related stigma and discrimination in CAR.

While worthy of celebration, the new legislation is not a complete victory. It does not fully decriminalise HIV but it does provide a much narrower definition of the prohibited conduct. Under the 2006 law, a person living with HIV could be prosecuted simply for HIV ‘exposure’ without neither intent nor transmission. The 2022 Act criminalises “intentional transmission of the virus,” defined as, inter alia, the fact that a person who knows his or her status intentionally transmits the virus through unprotected sexual relations without disclosing his or her seropositivity. A list of circumstances where the criminal law should not be applied is also included (e.g., in the case of transmission of the virus from a mother to her child).

For more information on the 2022 Act, see the HIV Justice Network’s Global HIV Criminalisation Database.

To enrol in the HIV Criminalisation Online Course, visit the HIV Justice Academy and sign up. It’s free!

On Zero Discrimination Day:
law reform is not easy, but it’s possible

Today, on On Zero Discrimination Day, HJN was delighted to participate in a webinar — co-hosted with the Global Partnership to end HIV-related Stigma and Discrimination and the Not A Criminal Campaign — that explored how law reform is possible.

You can watch the entire webinar here: https://fb.watch/i-79fP5bYV/

I was asked to provide some closing remarks. As we were running late, I had to cut some of my prepared remarks, which are included here in square brackets [ ]. Here they are in full.

We all know decriminalisation is possible. But it’s not easy. Still, it can and does happen.

It can happen thanks to the strong commitment of the three most important pillars that make change possible:

It starts with community leadership
It ends with government commitment and political will
And it happens with the support of the broader UN family (co-ordinated by UNAIDS) working closely with partners like the Global Fund and PEPFAR.

This is why the Global Partnership is the ideal mechanism to cement those three pillars together.

But what does it actually take to change laws? Successful strategic litigation or law reform doesn’t happen in a vacuum. That means not only funding the legal or human rights organisations challenging the laws, but also (a non-exhaustive list):

Funding the communities impacted by those laws, supporting people to know their rights;
Funding the community-based paralegals to help frightened and vulnerable people navigate the harsh realities of criminal legal system;
Funding community-based organisations to monitor rights violations, produce shadow reports, and document the evidence of the harms of criminalisation;
Funding community-led training and sensitisation of police, prosecutors and judges, and law-and policy-makers; and
Funding the community-based organisations supporting and co-ordinating the work regionally and globally, creating tools for challenge including working with the media where so much of the stigma created by these harmful laws is perpetuated, but can be also where hearts and minds can be changed.

So it takes a (global) village.

And time – which we don’t have much of if we are to reach those ambitious 10-10-10 targets by 2025, or 2030.

And money – which we never seem to have enough of.

But it is possible, and it can happen.

We’ve heard today about various forms of decriminalisation. And you all saw the map that Tinashe shared earlier showing that HIV criminalisation laws have been reformed or repealed in 15 countries over the past decade, but there’s still another 129 countries to go!

And although we didn’t get to hear today from our colleagues working with people who use drugs, and in drug policy, over 30 countries around the world have adopted legal reforms to remove the criminalisation of certain activities related to drug use.

But we also heard about the many challenges that remain.

Yesterday was the 2nd ‘HIV is not a crime day‘ in the US. It was fantastic to see so many activities and events raise awareness of an issue that is so close to my heart and which for too long has been underfunded and overlooked. In fact yesterday Funders Concerned About AIDS highlighted that in 2020 only around 0.5% of all philanthropic funding supported HIV decriminalisation work globally. Today, the HIV Justice Network and the HIV JUSTICE WORLDWIDE coalition is grateful to the Robert Carr Fund for civil society networks, to allow us to ensure that the message that ‘HIV is not a crime’ is heard, understood, and acted upon globally. But this work, like all decriminalisation work, needs more resources.

[This work is sometimes really hard and sometimes doesn’t always lead to success – at least the first time around. Despite the best efforts of our colleagues at KELIN and UGANET, we were disappointed to learn at the end of 2022 that constitutional challenges to Kenya’s and Uganda’s HIV-specific criminal laws were unsuccessful. Nevertheless, both will appeal these retrograde rulings, because they – and we – are on the right side of history. After all, Zimbabwe repealed their HIV-specific criminal law last year following years of advocacy following unsuccessful strategic litigation.

We know that HIV criminalisation mostly serves as a proxy for other kinds of discrimination – discrimination based on class, ethnicity, gender identity, migrant status, race, sex, sexual orientation, and other potential markers of social vulnerability.

And we know that most aggressive push to criminalise people living with HIV tends to occur at the intersection of several stigmatised or criminalised identities.

And so we firmly believe that this work must be intersectional and collaborative.]

We also know that decriminalisation alone will not address the full complexity of the intersecting stigmas behind these laws and their enforcement. As with other manifestations of discrimination, the ultimate solution lies in equality and empowerment. This is a marathon, not a sprint, and dismantling systems that have been built over decades and that oppress people living with HIV and key populations takes time.

We heard today from the South African Deputy Minister of Justice about the Sex Work Decriminalisation Bill. We, and many others in our global network have written letters of support to the South African government welcoming this change. This Friday, 3rd March, is International Sex Workers Rights Day. Let’s make sure South Africa knows the world is watching and that South African sex workers know we have their back.

HIV is not a crime, and sex work shouldn’t be a crime, either!

Let’s use our collective power across all social media and and on #ZeroDiscrimination Day use the hashtags #SexWorkIsWork and #HIVIsNotACrime.

Celebrating love and advocacy this Valentine’s Day

February is not only the month of love, it is also the anniversary of the establishment of the HIV Justice Network through our founding document, the Oslo Declaration on HIV Criminalisation.

It’s only appropriate, then, to celebrate both love and advocacy this Valentine’s Day.

Given the difficulty that some people living with HIV can face when it comes to finding love, including negotiating disclosure, as well as sex for pleasure, work, and/or creating a family in the context of HIV criminalisation, it is important to acknowledge that everyone is deserving of love and affirmation.

Love is also about respect for our autonomy, and so this Valentine’s Day we also need to stand up against public health officials taking and sharing data by using our blood without consent.

This year the HIV Justice Network is supporting two Valentine’s Day campaigns for and about people living with HIV, led by women living with HIV.

#LovePositiveWomen Campaign

The Love Positive Women campaign, developed and led by women living with HIV, is a global initiative running every Feb Feb 1^st-14^th for each of us to express and share our love and support for all women living with HIV.

The campaign uses social media to link local grassroots gestures of love to each other. Using Valentine’s Day as a backdrop, Love Positive Women “creates a platform for individuals and communities to engage in public and private acts of love and caring for women living with HIV.”

Going beyond romantic love to deep community love and social justice, the campaign is also a call to action. The HIV Justice Network has been supporting this campaign since 2017.

Follow the conversation using #LovePositiveWomen on social media.

#EndMHS Campaign

This Valentine’s Day, Positive Women’s Network-USA is spearheading a US-focused campaign tweeting at the US Centers for Disease Control (CDC) with messages full of tough love and snark about ending molecular HIV surveillance (MHS).

Molecular HIV surveillance and cluster detection and response (MHS-CDR) is one of four pillars of the US Ending the Epidemic Initiative. PWN-USA and many other organisations working on the rights of people living with HIV, including the HIV JUSTICE WORLDWIDE coalition, have serious concerns about using personal medical information – including our blood – for surveillance purposes without meaningfully involving people living with HIV, without informed consent, and often even without our knowledge.

HIV surveillance and HIV criminalisation collide to put the human rights of people living with HIV at risk and can be especially dangerous for Black and Brown people, migrants, sex workers, transgender women, and other communities that are hyper-policed and over-surveilled.

Recently, the Presidential Advisory Council on HIV/AIDS (PACHA) unanimously passed an historic resolution that responds to these concerns, and urges the CDC to change their guidance on MHS-CDR activities.

Tell the CDC that they must implement the PACHA resolution by using the social media toolkit and the hashtags #ILoveConsent #MyBodyMyData #CommunitiesNotClusters #EndMHS

Watch HIV Justice Live! which explores the history behind, and impact of our founding document, the Oslo Declaration on HIV Criminalisation. Hosted by HJN’s founder and Executive Director, Edwin J Bernard, the show, From Moment to Movement, featured some of the advocates who were behind the Oslo Declaration: Kim Fangen, Patrick Eba, Michaela Clayton, Ralf Jürgens and Susan Timberlake.